Cfcsyndrome.org Website Review

Welcome to the Cardio-Facio-Cutaneous (CFC) International website. If you are a newly diagnosed family, you are no longer alone in coping The Patient Crossroads Global CFC Registry is a centralized resource that is vital to helping researchers learn more about CFC syndrome, accelerating the development of new research and treatments, identifying issues that need research, and improving the care of all CFC International is a non-profit organization founded in 1999 by parents of children with CFC syndrome. We are the leading International organization dedicated to provide support for persons and families dealing with CFC syndrome. Welcome to the Cardio-Facio-Cutaneous (CFC) International website. If you are a newly diagnosed family, you are no longer alone in coping Every other year CFC International holds a biennial conference to gather families, care providers, therapists, teachers, scientists, researchers and doctors under one roof to learn and discuss the latest information on CFC syndrome. CFC International relies on the support of individuals, corporations and foundations to fund its programs and research initiatives. Your tax deductible contribution is incredibly meaningful to the patient community and our organization supporting them. Cardiofaciocutaneous syndrome is a rare genetic condition that typically affects the heart (cardio-), facial features (facio-) and skin (cutaneous). It is seen with equal frequency in males and females and across all ethnic groups. CFC International relies on the support of individuals, corporations and foundations to fund its programs and research initiatives. Your tax deductible contribution is incredibly meaningful to the patient community and our organization supporting them.