Dancingeyes.org.uk Website Review

the dancing eye syndrome support group was formed in 1988 with the principal aim of providing a link for parents of children with d.e.s.. both locally and nationally. the dancing eye syndrome trust provides support and information to families of children with dancing eye. if you’re an oms patient caregiver, we’d be extremely grateful if you were able to give us some feedback. please take a few minutes to because of the very abnormal eye movements which are almost invariably present in this rare condition. unlike the oscillating movements of nystagmus, eye movements are chaotic and best described as dancing. they are jerky and correspond with jerky movements which develop in a very small proportion of affected children recover from dancing eye syndrome (or opsoclonus-myoclonus) spontaneously, that is, without the most useful group of drugs which have been found to be effective are steroids and acth, a hormone which stimulates the adrenal glands to produce steroid. using this medication, children improve comparatively quickly and abnormal movements are usually abolished. are you looking for informal advice – or just someone to talk to? established in 1997, the dancing eye syndrome support trust gives parents - who may feel isolated - an opportunity to talk to others who are in the same situation as themselves and who may have already experienced similar problems. in this way members can provide mutual support and encouragement to parents whose children have been recently diagnosed. the trust arranges meetings for members and produces a newsletter containing information and ideas which could be useful for families. registered address: 12 granville road, reading, berkshire, rg30 3qd telephone: 07746 129950 the following ad*lt neurology colleagues have kindly agreed to be consulted on ad*lts who are having trouble with childhood onset oms. consultant neurologist, the walton centre for neurology and neurosurgery,