Personalgenomes.org Website Review

The Personal Genome Project, initiated in 2005, is a vision and coalition of projects across the world dedicated to creating public genome, health, and trait data. Sharing data is critical to scientific progress, but has been hampered by traditional research practices. The PGP approach is to invite willing participants to publicly share their personal data for the greater good. Founded in August 2005, the Harvard Personal Genome Project is the pilot PGP site, and is based in George Church's laboratory at Harvard The Global Network of Personal Genome Projects includes researchers at leading institutions around the globe: Founded in August 2005, the Harvard Personal Genome Project is the pilot PGP site, and is based in George Church's laboratory at Harvard Founded in December 2012, PGP Canada is operated by the McLaughlin Centre at the University of Toronto, and The Centre for Applied Founded in November 2013, PGP UK is led by Stephen Beck at University College London. Founded in November 2014, Genom Austria is based at the CeMM Research Center for Molecular Medicine of the Austrian Academy of Sciences. Announced in October 2017, The Personal Genome Project in China (PGP China) is led by Professor Li Jin at Fudan University, Shanghai. PGP China is now collecting contact information from interested participants and potential collaborators. Members of the Global Network of Personal Genome Projects adhere to the following guidelines: PUBLIC DATA. Participants are invited to publicly share their genomic and trait data in an integrated, publicly-accessible format using a NON-ANONYMOUS. The risks of participant re-identification are addressed up front, as an integral part of the consent and enrollment process; neither anonymity nor confidentiality of participant identities or their data are promised to research participants. Institutional Review Board (IRB) approval or local equivalent, and will work with PersonalGenomes.org to continue to implement identified